There's no way to sugarcoat it. Being a caregiver is exhausting. That's why it's so important for you to remember to include some down time as part of your required caregiver duties. This is especially true if you're already experiencing symptoms of caregiver burnout, such as anxiety, exhaustion, difficulty sleeping, trouble concentrating, or feeling resentful toward the person you’re helping.
Six years ago this month, we first heard the word Dermatomyositis. When the doctor told us my daughter Morgan, who was 11 years old at the time, had it, I didn’t even know how to say the word, let alone know what the diagnosis meant. But our family quickly got a crash course in understanding something no one should have to understand.
You’ve often heard the phrase: "Necessity is the mother of all invention." That couldn’t be more true for one of CareSync’s Co-Founder, Chief Operating Officer, and Registered Nurse, Amy Gleason. Here, Amy will share the personal story of her daughter’s rare condition that led to the invention of CareSync, a clinical care coordination company that is focused on patient-centric solutions for people with chronic illnesses. Later in the series, she will discuss the following components of chronic care management including: requirements, insights 15 months in, struggles, overcoming obstacles, trends, the true value of CCM, and where she believes the future of healthcare is heading.
CareSync proudly announces that Amy Gleason, Chief Operating Officer and well-known patient advocate, will be recognized by the White House as a “Champion of Change” for Precision Medicine on Wednesday, July 8th.
My 15 year old daughter Morgan has been fighting a battle against a life-threatning autoimmune disease for over 3 years now. This year has brought quite a few challenges, including symptoms that have been difficult to get under control, side effects like meningitis from treatment, and the other typical struggles that come with managing a complex, systemic disease.
Earlier this summer, we had the opportunity to start having discussions with one of the most amazing organizations: The Global Genes Project. They are one of the leading rare and genetic disease patient advocacy organizations in the world, and work to promote the needs of the rare and genetic disease community.