6 Years After Diagnosis: Lessons Learned

Posted by Amy Gleason

Jun 30, 2016 5:24:51 PM

Six years ago this month, we first heard the word Dermatomyositis. When the doctor told us my daughter Morgan, who was 11 years old at the time, had it, I didn’t even know how to say the word, let alone know what the diagnosis meant. But our family quickly got a crash course in understanding something no one should have to understand.

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Topics: chronic care management (CCM), juvenile dermatomyositis, patient advocacy, CareSync Care Plans, health tips, healthcare costs & insurance, share your health stories, family health

How a Rare Disease Inspired the Creation of a Patient-Centric Healthcare Solution

Posted by Mark Nalywajko

Apr 14, 2016 11:00:00 AM

One-on-One with Amy Gleason: Part 1

You’ve often heard the phrase: "Necessity is the mother of all invention." That couldn’t be more true for one of CareSync’s Co-Founder, Chief Operating Officer, and Registered Nurse, Amy Gleason. Here, Amy will share the personal story of her daughter’s rare condition that led to the invention of CareSync, a clinical care coordination company that is focused on patient-centric solutions for people with chronic illnesses. Later in the series, she will discuss the following components of chronic care management including: requirements, insights 15 months in, struggles, overcoming obstacles, trends, the true value of CCM, and where she believes the future of healthcare is heading.

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Topics: chronic conditions, chronic care management (CCM), care coordination, Medicare, CCM compliance, juvenile dermatomyositis, webinars, medical records, medication & treatments, patients, mHealth, patient advocacy, patient engagement

15-Year-Old CareSync Patient Gets National Attention for YouTube Video

Posted by Courtney Larned

Jan 25, 2014 6:58:00 PM

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Topics: patient engagement, patients, mHealth, patient advocacy, juvenile dermatomyositis, family health, CareSync in the news

"I Am a Patient–and I Need to Be Heard!"

Posted by Courtney Larned

Jan 22, 2014 2:00:00 PM

This 15 year old (and I've known her since she was six) opens up about what it's like to be a patient.  I am most impressed that she recognizes that she wants to be engaged and wants to participate in her care, but feels like the majority of her clinical team doesnt respect her needs.  This takes guts!

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Topics: patient engagement, share your health stories, juvenile dermatomyositis, videos, mHealth, patients, family health

3 Years After Diagnosis: Lessons I've Learned

Posted by Amy Gleason

Jun 25, 2013 8:12:00 AM

Three years ago today, we first heard the word Dermatomyositis.
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Topics: rare diseases, juvenile dermatomyositis, family health, patients, mHealth, share your health stories, health tips

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